Mollaret's Meningitis Association

Our goal is to support those with Mollaret’s meningitis by advocacy through research.  Mollaret’s Meningitis Association is a non-profit 501(c)(3) corporation advocating for Mollaret’s Meningitis globally.

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Patients/Supporters

Information for people who have been diagnosed with this disease and their supporters.

Providers

Information for those treating patients with Mollaret’s meningitis.  This includes doctors, nurses, etc.

Researchers

Information for those researching Mollaret’s meningitis.  Help us find a cure!

Making an Impact Across the Globe

We are the only nonprofit that is supporting people diagnosed with Mollaret’s meningitis worldwide.  Click the button below to learn more about what we do.

CoMO Blog Post

Dustin Pepper, our Executive Director, recently had the opportunity to write a post for our partner, the Confederation of Meningitis Organisations (CoMO), about the importance of partnerships.  You can read the post...

Trying to Cope

By MaryI was diagnosed about 3 years ago. It started on a Saturday morning at the end of May with a headache. We had family visiting for the weekend and had gone out to Mexican food. At first I thought it was the sugar in the Margaritas. Took a couple of Excedrin but...

Dr. Alon Hait to present research findings at University of Oxford

Dr. Alon Hait   Dr. Alon Hait, one of our Medical Advisory Board members, will be presenting his research on Mollaret's Meningitis to a group at Oxford University later this month. His talk is called, “Mollaret’s meningitis – the case of an underused diagnosis and the...

Life with Mollaret’s Meningitis

By Julie   Mollaret meningitis has controlled my life. I feel so badly for everyone on this website who has this horrible disease. I have looked and researched for years to find answers. Any answers. My health has not been good. Since being diagnosed first in the year...

Sick of Being Sick

By William | Denver, CO About 10 years ago I started having problems with headaches, nausea, digestive problems, and a lot of back pain but not usually all at once. It wasn't until 2015 that I had a major episode of Mollaret’s, and since then I've had multiple...

16 Episodes in 22 Years

By Cathy - Holly, MIIn 1995 I woke in the morning with Bell's Palsy (the right side of my face was paralyzed). Two days later I was hospitalized with meningitis. I am just recovering from my 16th episode in 22 years. Some years I get it twice, but I have also gone 4...

My Nightmare

By TeresaI was taken to the hospital September 5, 2001 from work. My boss called my husband and told him I was talking backwards and just not acting right. I had been having a headache for three days at this point. On Aug, 28, 2001 I was bitten by a dog that had no...

Mollaret’s Meningitis Community Loss – Vince Bossi

We were saddened to hear about the loss of Vince Bossi, a member of our Mollaret's Meningitis community, recently. He was battling the varicella-zoster virus and Mollaret's meningitis.  You can read more about his struggle with this disease at the links below, as well...

Mollaret’s Meningitis Sufferer

By Traci, Pelzer, SC, USI have been battling this horrific disease for 16 years. I've had 6 episodes so far. I usually go 2-3 years between each occurrence. Hopefully someone will find a cure for...

Meningitis 15 times in 38 years

By Laura: San Marcos, TXMy first episode of meningitis was in 1980. I was 24 years old and was hospitalized for 10 days. I have had recurring meningitis at least 15 times. The first few times, I was hospitalized and spinal fluid was removed for a diagnosis. Each...

Mailing Address

109 W Honeysuckle Ave, P.O. Box 2784
Hayden, ID 83835

Phone

+1 208 820 1662