Our Blog

We will post information here about news, research, updates, etc.

2018 Q2 Research Update

2018 Q2 Research Update

Identification of novel innate immunodeficiencies in patients with HSV-2 Mollaret’s meningitis Dr. Alon Schneider Hait, M.D, Ph.D fellow Supervision: Prof. Trine H. Mogensen Department of Infectious diseases, AUH Department of Biomedicine, Faculty of Health Aarhus,...

My Fight for a Better Life!

My Fight for a Better Life!

My Fight for a Better Life! By Rosely Hodson Australia, NSW state I'm 57 years old. I'm Brazilian with 3 children and 4 grandchildren ( they live in Brazil). I found the love of my life and decided to move to Australia in 2011 to marry him. My first episode was at the...

My Plea

My Plea

By Christine H. The purpose is to serve as a plea. This is a plea for someone out there to HEAR, LISTEN, and use this information to ACT. This is the voice of one, the voice for many, the voice of all who are suffering from Mollaret’s Meningitis. My name is Christine...

Amanda Buckland Thanks Her Lifesavers

Amanda Buckland Thanks Her Lifesavers

Amanda Buckland cannot remember anything from Boxing Day night when she became feverish, started vomiting, and was experiencing severe muscle pain and confusion. The 35-year-old praised Simon Read and Matthew Laws from the East of England Ambulance Service NHS Trust...

Our Founder on KHQ Spokane

Our Founder on KHQ Spokane

Our founder, Michael Hrehor, was featured on KHQ local news (Spokane, WA) to talk about an amazing donation he received from Chive Charities.  The chairity is donating an Action Trackchair ST so Michael will be able to function outside of his house and participate in...

CoMO Blog Post

Dustin Pepper, our Executive Director, recently had the opportunity to write a post for our partner, the Confederation of Meningitis Organisations (CoMO), about the importance of partnerships.  You can read the post...

Trying to Cope

By MaryI was diagnosed about 3 years ago. It started on a Saturday morning at the end of May with a headache. We had family visiting for the weekend and had gone out to Mexican food. At first I thought it was the sugar in the Margaritas. Took a couple of Excedrin but...

Dr. Alon Hait to present research findings at University of Oxford

Dr. Alon Hait to present research findings at University of Oxford

Dr. Alon Hait   Dr. Alon Hait, one of our Medical Advisory Board members, will be presenting his research on Mollaret's Meningitis to a group at Oxford University later this month. His talk is called, “Mollaret’s meningitis – the case of an underused diagnosis and the...

Life with Mollaret’s Meningitis

By Julie   Mollaret meningitis has controlled my life. I feel so badly for everyone on this website who has this horrible disease. I have looked and researched for years to find answers. Any answers. My health has not been good. Since being diagnosed first in the year...

Sick of Being Sick

By William | Denver, CO About 10 years ago I started having problems with headaches, nausea, digestive problems, and a lot of back pain but not usually all at once. It wasn't until 2015 that I had a major episode of Mollaret’s, and since then I've had multiple...

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Information on this site is provided for informational purposes only and is not meant to substitute for the advice provided by your own physician or other medical professional. The results reported may not necessarily occur in all individuals. Statements made on this site have not been evaluated by the Food and Drug Administration, and are not intended to diagnose, treat, cure or prevent any disease. Consult your physician before implementing any recommendations.

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